PROPOSAL TO DECLARE CANCER A NOTIFIABLE DISEASE IN INDIA

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Context

Recently, A Parliamentary Committee on Petitions (Rajya Sabha), headed by Narain Dass Gupta, has recommended that cancer be declared a notifiable disease across all states and Union Territories in India.
The move is aimed at enhancing surveillance, data collection, and policy planning to combat the growing cancer burden in the country.

WHAT IS A NOTIFIABLE DISEASE?

A notifiable disease is a condition legally required to be reported to government health authorities by doctors, hospitals, and laboratories.
The aim is to enable early detection, monitoring, and timely public health intervention.
Common notifiable diseases include tuberculosis, cholera, and dengue.

WHY IS THIS PROPOSAL IMPORTANT?

Current Challenges	Expected Improvements
Cancer is non-communicable, so currently not mandated for notification in most states	Mandatory reporting will lead to robust national cancer data
Fragmented data collection across states	Enables centralised tracking and monitoring
NCRP (National Cancer Registry Programme) currently covers only 16–18% of India’s population	Will expand surveillance coverage to the entire population
Lack of region-specific, real-time data impedes targeted prevention policies	Helps design region-specific interventions (e.g., for oral, breast, cervical cancers)

STATEMENTS BY EXPERTS

Welcomed the proposal as a “turning point” in India’s fight against cancer.
Stated that it would improve data accuracy, drive targeted prevention, ensure fairer resource allocation, and improve treatment outcomes.
Stressed that mandatory reporting will build a comprehensive cancer database, essential for public health planning.

BENEFITS OF DECLARING CANCER NOTIFIABLE

Improved Surveillance & Early Detection:
- Real-time tracking of cancer incidence trends, including emerging patterns like rising oral cancers in young adults.
- Helps detect regional or demographic variations in cancer occurrence.
Data-Driven Policy Making:
- Empowers policymakers with evidence-based data for focused programs:
  - Tobacco control
  - HPV vaccination
  - Region-specific screenings
  - Anti-pollution measures
- Efficient Resource Allocation:
  - Enables equitable distribution of infrastructure, specialists, and cancer care facilities.
- Better Health Outcomes:
  - Early detection and timely intervention lead to higher survival rates and lower treatment costs.

ADDRESSING CONCERNS

Concern	Clarification
Cancer is non-communicable, so doesn’t qualify as “notifiable”	Can be classified as a “documentable disease” – requiring reporting for statistical and planning purposes
Risk of privacy violation or stigma	Data collection must be designed to protect patient confidentiality, avoid discrimination, and ensure dignity

CURRENT SCENARIO IN INDIA

Some Indian states have individually declared cancer notifiable, but there is no national mandate.
The NCRP (National Cancer Registry Programme), managed by ICMR-NCDIR, lacks full coverage and legal authority to enforce reporting.
Without legal backing, cancer case reporting remains voluntary and inconsistent.

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